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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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HYDROCEPHALUS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › HYDROCEPHALUS?

  • This topic has 3 replies, 2 voices, and was last updated 10 years, 2 months ago by Dr. Diana.
Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
    Posts
  • January 17, 2013 at 6:06 pm #394
    Give My Daughter the Shot!
    Participant

    Ouch! Does hydrocephalus manifest itself as stabbing along with dull head pain. Also serious neck pain that’s stiff achy sore. Also massive head and jaw pressure? IS this ccsvi? It’s horrible. What is it. HOrrid pressure, headachy dull stabbing pain. Bad neck pain.

    January 17, 2013 at 6:07 pm #3354
    Give My Daughter the Shot!
    Participant

    nauseated too.

    January 17, 2013 at 6:31 pm #3355
    Give My Daughter the Shot!
    Participant

    I have also vision disturbance, ticks, sensation of backward jerking. Dizziness. What causes this? It’s really bad.

    Returned. I’m not sure what to do and scared that I need to deal with the headache to keep from it becoming a migarain.

    And now I have to deal with confusion.

    What causes this and what do I take.or do.

    January 17, 2013 at 10:04 pm #3357
    Dr. Diana
    Keymaster

    Hi all, you know the most common symptom I hear is that horrible headache at the base of your skull that radiates down your neck to the tops of your shoulders. And yes, nausea, dizziness, some tremor is possible, hearing a “whooshing” sound is common, and just the “feeling” of pressure! I absolutely could not blow up a balloon (or any valsalva maneuver) without getting worse. OH! And motion sickness (oh my…), sensitivity to light, sound, and movement! My son and I both could not look at ceiling fans — nor our dogs running around the house. Terrible feeling. Diamox got rid of it overnight for my kids and I, and although I expected to need it forever, almost 2 years later (and lots of research, supplements, etc), I now only need it when I get inflamed, say, after the flu is a good example. Once you have had that pressure go away, you KNOW when it is back. I can trust my kids (usually) to know when they need it now, and it is no longer full-time. Yea!! Ask your doc? 😉

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