- This topic has 2 replies, 2 voices, and was last updated 7 years, 11 months ago by .
- You must be logged in to reply to this topic.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › in the Driscoll theory, how does one account for passing / failing a tilt table test?
lets say that ICP is high or low and cerebral fluid is stuck and blocking blood flow to the brain. Why would one’s blood pressure still drop?
In my case for example, I had a tilt table test and I was fidgeting a lot. Nothing was happening but then the cardiologist noticed my fidgeting (which I realize now was a way to self treat POTS) .. he made me hold still and within 10 min I was almost completely unconscious.
Would that be a indicator that I do also have lax veins and venous pooling in lower extremities?
I’m working on getting my doctor to try out the Diamox but in the meantime I’m on all the typical POTS treatments (salt, fludro, midodrine) but I find my symptoms are not typical.
Any thoughts are welcome and appreciated 🙂
One thought springs to mind and that is, if the build up of cerebrospinal fluid pressure is alongside the brain-stem (which forms part of the governance of the autonomic nervous system) then this could interfere with the regulation of blood pressure.
you know, since Fludrocortison and Midodrine do help a “little bit” … I bet maybe I have both types. I wonder if that is possible/common. My dizziness, tachycardia and fatigue seem to be the worst at night.. not in the morning like so many other POTS sufferers describe. I also cannot drink the amount of water they suggest, not only does it make me more dizzy but I know I start urinating too much (polyuria) and then become vitamin deficient. Coffee seems to help quite a bit, I think Dr. Driscoll would refer to this as “self medicating” 🙂
All thoughts are welcome and thank you to all who have responded.. I’m trying to solve a mystery..
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross