• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Inflamed Optic Nerve

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Inflamed Optic Nerve

  • This topic has 4 replies, 2 voices, and was last updated 8 years, 9 months ago by Julie Stinespring.
Viewing 5 posts - 1 through 5 (of 5 total)
  • Author
    Posts
  • March 12, 2014 at 2:46 pm #679
    Julie Stinespring
    Participant

    My last eye exam showed an inflamed optic nerve in my right eye and thin vessels leading to it. I saw that this is a common finding in MS. Is this normal for EDS – Hypermobility type or any type of EDS. Vision in this eye is dim, images are fuzzy and I have to continue to blink to refocus or the image gets so blotchy. My left eye definitely over compensates for my right. Any info would be helpful. Thanks.

    Julie

    March 12, 2014 at 8:26 pm #4929
    Dr. Diana
    Keymaster

    Julie, what was the diagnosis? Optic neuritis? Pseudo-tumor cerebri? Something else? The answer is in the diagnosis, my friend. If you’re not sure, please ask your doctor!! Then if you have any questions (or FUNDUS PHOTOS — those would be awesome), just let us know! 😉

    March 12, 2014 at 11:58 pm #4931
    Julie Stinespring
    Participant

    She didn’t diagnose me with anything, said that she wanted to see me back in 3 months. It was done via a military optometrist. I will see if I can get the fundus images.

    March 13, 2014 at 7:15 pm #4932
    Dr. Diana
    Keymaster

    Julie, Please don’t be afraid to ask your doctor for a diagnosis, or a list of suspected diagnoses! If given a list, then you want to know their plan of attack to narrow the diagnosis. I think we all need (strong) advocates with us when we go to doctors, to ask the hard questions, to force the doctors to think, and to analyze the problem (with you, the patient, preferably). I’ve found that it can be too easy for some doctors to say, “Let’s just watch it… See what happens.” I like to be a bit more proactive than that! Eye doctors have SO MANY ways to test you, your vision, even your eye-brain connection. Sometimes we need to ‘encourage them’ to use it! 😉 Although I sometimes hear some horror stories about military doctors, I will tell you that I did my internship at an army base, and we had some of the greatest doctors around! It was also great in that the ophthalmologists were right across the hall from the optometrists, so it was easy just to trot over and involve an entire team on a patient’s case. It was a new hospital, we had great equipment, and when I left, I was spoiled rotten. I assumed that doctors “in the real world” would be as eager to collaborate as what I experienced in my internship. It was EYE OPENING to see how the medical world seemed more centered around the money. 🙁 In the military, everyone was on a set salary and collaboration was not a threat to anyone.) BOY, do I miss those days! 😉 Again, please encourage your eye doctor to “dig deeper”.

    May 11, 2014 at 12:43 pm #5013
    Julie Stinespring
    Participant

    So, I was able to obtain my fundus images, OCT, and visual field results. My doctor clarified that “you do not have nerve inflammation. The center area of the nerve in both eyes is slightly larger than average. This could be normal variation or it could be a sign that the nerve has been damaged over time due to glaucoma.”

    I will be moving to Baltimore in July to be closer the EDS docs. Any advice to what these results show? I can send you her diagnosis and other exam results via email or private message. Just let me know how you would prefer to view them. Thanks for your input.

    Julie

    Attached files

  • Author
    Posts
Viewing 5 posts - 1 through 5 (of 5 total)
  • You must be logged in to reply to this topic.
Log In

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020