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My last eye exam showed an inflamed optic nerve in my right eye and thin vessels leading to it. I saw that this is a common finding in MS. Is this normal for EDS – Hypermobility type or any type of EDS. Vision in this eye is dim, images are fuzzy and I have to continue to blink to refocus or the image gets so blotchy. My left eye definitely over compensates for my right. Any info would be helpful. Thanks.
Julie
Julie, what was the diagnosis? Optic neuritis? Pseudo-tumor cerebri? Something else? The answer is in the diagnosis, my friend. If you’re not sure, please ask your doctor!! Then if you have any questions (or FUNDUS PHOTOS — those would be awesome), just let us know! 😉
She didn’t diagnose me with anything, said that she wanted to see me back in 3 months. It was done via a military optometrist. I will see if I can get the fundus images.
Julie, Please don’t be afraid to ask your doctor for a diagnosis, or a list of suspected diagnoses! If given a list, then you want to know their plan of attack to narrow the diagnosis. I think we all need (strong) advocates with us when we go to doctors, to ask the hard questions, to force the doctors to think, and to analyze the problem (with you, the patient, preferably). I’ve found that it can be too easy for some doctors to say, “Let’s just watch it… See what happens.” I like to be a bit more proactive than that! Eye doctors have SO MANY ways to test you, your vision, even your eye-brain connection. Sometimes we need to ‘encourage them’ to use it! 😉 Although I sometimes hear some horror stories about military doctors, I will tell you that I did my internship at an army base, and we had some of the greatest doctors around! It was also great in that the ophthalmologists were right across the hall from the optometrists, so it was easy just to trot over and involve an entire team on a patient’s case. It was a new hospital, we had great equipment, and when I left, I was spoiled rotten. I assumed that doctors “in the real world” would be as eager to collaborate as what I experienced in my internship. It was EYE OPENING to see how the medical world seemed more centered around the money. 🙁 In the military, everyone was on a set salary and collaboration was not a threat to anyone.) BOY, do I miss those days! 😉 Again, please encourage your eye doctor to “dig deeper”.
So, I was able to obtain my fundus images, OCT, and visual field results. My doctor clarified that “you do not have nerve inflammation. The center area of the nerve in both eyes is slightly larger than average. This could be normal variation or it could be a sign that the nerve has been damaged over time due to glaucoma.”
I will be moving to Baltimore in July to be closer the EDS docs. Any advice to what these results show? I can send you her diagnosis and other exam results via email or private message. Just let me know how you would prefer to view them. Thanks for your input.
Julie
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