• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Introduction

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Introduction

  • This topic has 2 replies, 2 voices, and was last updated 9 years, 9 months ago by Lab-Scientist-Lady.
Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • June 2, 2013 at 10:00 pm #455
    Colin
    Participant

    Hi everyone,

    I just found this community recently through the youtube videos, and it’s given me a fresh dose of optimism! I was only diagnosed with EDS-Hypermobility during this past winter, but it had been a LONG time coming. 🙂

    Now, at least the pieces are coming together. I’d had bizarre medical issues my entire life … dislocations, muscle weakness, chronic fatigue, chronic joint/muscle pain, headaches, unexplained anaphylaxis, poor temperature regulation, inability to run a block without seeing stars… you get the picture! :/

    Anyway, it looks like EDS + MCAD + Dysautonomia are the gang of culprits. It’s been such a relief to know that I’m not just lazy, crazy, or a weakling. And unlike the rheumatologist who diagnosed me, I don’t agree that “there’s nothing to be done about EDS”.

    So anyway, hi! I can’t wait to learn from all of you. 🙂

    -Colin

    June 3, 2013 at 3:03 pm #3711
    Dr. Diana
    Keymaster

    Hi everyone,

    I just found this community recently through the youtube videos, and it’s given me a fresh dose of optimism! I was only diagnosed with EDS-Hypermobility during this past winter, but it had been a LONG time coming. 🙂

    Now, at least the pieces are coming together. I’d had bizarre medical issues my entire life … dislocations, muscle weakness, chronic fatigue, chronic joint/muscle pain, headaches, unexplained anaphylaxis, poor temperature regulation, inability to run a block without seeing stars… you get the picture! :/

    Anyway, it looks like EDS + MCAD + Dysautonomia are the gang of culprits. It’s been such a relief to know that I’m not just lazy, crazy, or a weakling. And unlike the rheumatologist who diagnosed me, I don’t agree that “there’s nothing to be done about EDS”.

    So anyway, hi! I can’t wait to learn from all of you. 🙂

    -Colin

    Hi Colin and Welcome! I think you’ll find this group of folks knowledgeable and extremely eager to help. And I agree with you 100% — “There’s nothing to be done about EDS” — In my experience, this is VERY far from the truth. Optimism abounds. 😉

    June 10, 2013 at 10:34 pm #3747
    Lab-Scientist-Lady
    Participant

    I am tired of being told there is nothing you can do about it too. If the doctors were in our shoes and saw what it does to us and our families, maybe then they would care. All they have to do is spend 5 minutes with you and send you on. I even had one doctor tell me that I was too much for him to handle and not to come back. It was the first appointment I had with him and I had spent hours filling out his paper work. Doctors no longer care, and see us as a liability. I had doctors tell me that they knew I had something wrong, but it was too much work for them. I have been passed around from one doctor to another.

  • Author
    Posts
Viewing 3 posts - 1 through 3 (of 3 total)
  • You must be logged in to reply to this topic.
Log In

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020