August 24, 2012 at 2:38 pm #294ScaredSingleMamainMarylandParticipant
Good afternoon! Has anyone ever taken Klonopin? My Dr. is calling me in a script for Klonopin. Long story short, I have been to the hospital this week feeling like I was honestly going to die (tachycardia, chest pain, crushing sensation in throat, severe dizziness, twitching, tremors, feeling out of it, etc.). The ER Dr. though I was having spasms for some reason and the spasms were aggravating nerves in my neck and chest which exacerbated my POTS symptoms. They gave me IV fluids, a strong dose of Tylenol, and Valium. The Valium seemed to work wonders for my POTS symptoms. I had yet a second incident another day and also took Valium (only 1mg) and it eased my POTS symptoms within 30 minutes. So, today when I spoke to my neurologist, he suggested Klonopin, which I reasily agreed to after my recent experiences. Has anyone ever taken Klonopin or benzo. medications? Did it help?
Ang.August 24, 2012 at 6:45 pm #2798Give My Daughter the Shot!Participant
Hi Ang. I knew somebody who took it. This person had none of the health issues that we do. My knee jerk is that it was for acute anxiety (in the case of the above referenced person). When I looked it up (briefly) to see if I was incorrect, it appears to confirm (NIH) that it is used for panic attacks and to reduce inappropriate electrical activity in the brain. It appears to recommend a gradually increasing dosage. Did you inquire as to how it might affect your GI tract? I am not sure whether or not you have GI issues but do know that it is a concern for me and goes hand-in-hand with EDS.
Please bear in mind that I am definitely no doctor nor have I gotten to the place where I’ve mastered my own ‘issues’. I think the girl that I knew said she took it for her legs? She also spoke non-stop about her panic attacks. Maybe it simply calms neurological activity. Especially if it works for legs too. Did your neurologist tell you what he expected to see as a result or what a reasonable goal/expectation of this treatment would be?
I am in the market for a neurologist who understands EDS. Who do you see?August 24, 2012 at 10:38 pm #2799ScaredSingleMamainMarylandParticipant
The Dr. thinks Klonopin will calm my heart rate and BP and help w/abnormal electrical activity (I have been diagnosed with complex migraines and an EEG suggests epileptiform activity but the Dr previously assumed it was from migraines; however multiple family members including my daughter have epilepsy). Since the Valium helped me I am willing to try the Klonopin. My Neuro. knows a little about EDS but not a lot. If I would ever be diagnosed w/EDS (as my sister does have) I would want to see someone else to follow it. My sister’s Geneticist is knowledgeable of EDS but it takes 9 months or longer to get in to her.
Ang.August 25, 2012 at 12:27 am #2800abbilouParticipant
My daughter takes it and for her it has been one of the most helpful drugs for dealing with the POTS. Years ago she was diagnosed with an anxiety and mood disorder, but it wasnt until insomnia from the pots became a huge issue that clonzapam was prescribed.. Didn’t help the insomnia but I noticed right away she was so much more able to deal with the pots symptoms so we switched it to a morning med. Anxiety/panic has a negative impact on pots symptoms as well as pots symptoms has a neg impact of the anxiety/panic and it’s really help that. Oddly the insomnia improved once we switched it to mornings. Seems less panic/anxiety during the day helped for sleeping.
Hope it’s as helpful for you as it has been for my daughter.August 30, 2012 at 8:49 pm #2827qanikParticipant
I use it every night a small bit for sleep. 0.25mg. Its the only thing that has ever worked for me without and big side effects. I use it on a rare occasion when I get the epinephrine surges that dont go away in a timely fashion. Its a longer acting benzo then most.
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