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The condition on my hands is looking more and more like dermatomyositis, as Dr. Diana suggested. I am still waiting to see a rheumatologist, but here are some pictures I just took.
MJ, You’re killing me here! 😉 When are you going to be checked by your good doctors, my friend? 😉
I think I better call to make sure the referral went through! I did see the allergist/immunologist, and he said all of the pictures were extremely helpful. Especially of the red rash on my hands and what looks like a solid red line at my wrist. Unfortunately I was so dizzy when I was there, but I did not answer his questions very well. Based on the bloodwork and 24 hour urine that he ordered, he is testing for mast cells and mastocytosis-are these the same thing?
Right at the moment, the condition on my hands is dormant and has been so for about a week. The wounds are healing but I do have scars, and last night the red rash started up again, but very mild. When I have these periods of remission, I feel at least 75% better and I can function; life is not so difficult.
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross