• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

MCAD or true Mastocytosis

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › MCAD or true Mastocytosis

  • This topic is empty.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • June 26, 2013 at 9:30 pm #470
    Ashton7987
    Participant

    I have EDS, and POTS recently I have been experiencing excruciating abdominal pain. It took 8 visits to the ER before they finally admitted me and did a stomach biopsy. It came back positive for increased mast cells. My GI doctor suspects I Have Systemic Mastocytosis. He referred me to a hematologist/omcolgist who said that this condition is so rare he wants me to see a rare disease specialist. I feel like I am just getting the run around. Can I have elevated mast cells in my stomach and still have MCAD or would it be true Mastocystosis? I have demographia, hives, and other symptoms that have gotten a lot better with Zertec, Pepcid, and Prilosec along with Cromolyn so I know it’s one or the other. Any opinions…?

  • Author
    Posts
Viewing 1 post (of 1 total)
  • You must be logged in to reply to this topic.
Log In

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020