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I’m just wondering if any of the CCSVIers on the board suffer with migraines, headache and facial pain from their CCSVI?
I’ve had a constant headache for 3+ years now and nothing helps (a short course of heparin provided temporary relief) – I am convinced this is due to CCSVI for me. The pain travels mainly up the right side of my face, neck, around my right ear, across my eyebrows and top lip etc.
It gets far worse with my cycle, wondering if the viscosity of the blood during the cycle has something to do with it too.
Could be….are you going to get the MRV or venogram to see if you have it? Do you have MS or EDS or both?
I’m just wondering if any of the CCSVIers on the board suffer with migraines, headache and facial pain from their CCSVI?
I’ve had a constant headache for 3+ years now and nothing helps (a short course of heparin provided temporary relief) – I am convinced this is due to CCSVI for me. The pain travels mainly up the right side of my face, neck, around my right ear, across my eyebrows and top lip etc.
It gets far worse with my cycle, wondering if the viscosity of the blood during the cycle has something to do with it too.
CCSVI angioplasty may help with some of those symptoms (like facial pain). But first, did you try Diamox and mast cell meds? Histamine, for example, is a huge reason for migraines. I always recommend that patients work on their CSF pressure and their mast cells before angioplasty before CCSVI. I think we restenose because of mast cell mediators (among other things). Let us know? 🙂 Diana
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