- This topic has 5 replies, 3 voices, and was last updated 5 years, 7 months ago by .
- You must be logged in to reply to this topic.
Hi, Im new here. I have 2 kids ages 11 and 14 with pots. My 14 y/o son gets horrific migraines lasting a week every month, but has been stuck in one for 2 months now. He has other pots symptoms (insomnia, lots of gi issues, headaches, exercise intolerance, fatigue) but with this migraine he cannot function at all. We have tried every preventive and abortive imaginable, nerve blocks, botox, er, cefaly, etc. Trying to find link between pots and migraines and how to help? Any new ideas?
My daughter is 11, has constant stomach pain and dizziness. I fear she is following the same path 🙁
Hey, just wondered if you’d considered a magnesium deficiency, with regard to the migraines ?
Thanks, we supplemented with magnesium and they have done magnesium infusions with no luck.
You sound like you’ve done the rounds, so you probably know that GI issues often cause vitamin and mineral deficiencies. Tell me does he remember to take a B vitamin supplement daily ? I think vitamin D deficiency may have been linked to migraines too.
Is he hypermobile by any chance ? It could be his head position aggravating things – chin down is bad, head pushed forwards by pillow is bad too. Have you tried him with a ‘cushtie’ type horseshoe-shaped neck cushion, for when he’s sat relaxing. I recommend that a fastener of some sort be sewn to the front ends, so it can be closed to form a circle around the neck, it gives better head support that way.
Thanks! We are working with an integrative doc to look at vitamin/mineral balances etc. I’ll have him try to horseshoe pillow tho!
Things that help my migraines: drinking 64oz water per day, taking HCl capsules with meals, avoiding histamine-heavy and histamines releasing foods and inflammatory foods (sugar, dairy, gluten, nuts, chocolate, fruits and juices, vinegar, malt, limiting meat), and taking a probiotic with meals. If I slack off on any of that…BAM, migraine.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross