- This topic has 2 replies, 2 voices, and was last updated 5 years, 3 months ago by .
- You must be logged in to reply to this topic.
It has been a while since I have been on here. The last year and half have been like being tortured slowly. Sine being dx with EDS, they have also dx with POTS & Sympathoadrenal Imbalance. I have been having excruciating back neck pain. I have started to develop scoliosis in my cervical and thoracic spine. I finally talked my Dr. into ordering a C-spine MRI, but he put in the consult it was most likely pschyatric in nature. I would love to go see Dr. Driscoll, but I am still Active Duty Navy getting medically processed out and they will not let me take any leave. I am desperate! Anyways hoping that someone could take a look at this a give me something I can tell the DRs to make them take me seriously.
Here are one or two things they could consider:-
For more info on possibilities and explanation of mechanisms, see:-
I did my Grabb-Oaks measurement and depending on the image i’m getting between 11-14mm, which according to my research it should be less than 9mm. I also calculated my Clivo-axial angle at 136 degree’s. Now if I could just get a doctor to agree that I have CCI.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross