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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › New Images

  • This topic has 2 replies, 2 voices, and was last updated 7 years, 3 months ago by jlreed.
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  • November 19, 2015 at 10:12 am #918
    jlreed
    Participant

    Hello Everyone!

    It has been a while since I have been on here. The last year and half have been like being tortured slowly. Sine being dx with EDS, they have also dx with POTS & Sympathoadrenal Imbalance. I have been having excruciating back neck pain. I have started to develop scoliosis in my cervical and thoracic spine. I finally talked my Dr. into ordering a C-spine MRI, but he put in the consult it was most likely pschyatric in nature. I would love to go see Dr. Driscoll, but I am still Active Duty Navy getting medically processed out and they will not let me take any leave. I am desperate! Anyways hoping that someone could take a look at this a give me something I can tell the DRs to make them take me seriously.

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    November 21, 2015 at 7:09 am #5713
    Barbara
    Participant

    Here are one or two things they could consider:-

    For more info on possibilities and explanation of mechanisms, see:-

    http://prettyill.com/forums/viewthread/712/

    Attached files

    November 22, 2015 at 4:24 pm #5717
    jlreed
    Participant

    Thanks Barbara,

    I did my Grabb-Oaks measurement and depending on the image i’m getting between 11-14mm, which according to my research it should be less than 9mm. I also calculated my Clivo-axial angle at 136 degree’s. Now if I could just get a doctor to agree that I have CCI.

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