May 18, 2017 at 10:57 am #1118
I am in the UK with no access to any quality medical help as many on here can relate to, so I self treat. I have a medical background so am confident in researching and obtaining what I need safely.
I am aware that many people in the UK and other countries struggle to obtain a prescription for a short trial of Diamox, and whilst I am not advocating people buy medication willy nilly from the internet, I feel our particular population are frequently better informed than the doctors treating us (if any) and where prescriptions are obtained, they are frequently procured on the patient’s request, and the patient also largely seems to have to navigate the dosage instructions.
If a short trial helps you, this can then greatly strengthen your case to argue for an ongoing prescription from your doctor, but without a trial it is a catch 22 situation.
I have found an online pharmacy which sells Diamox fairly cheaply with no prescription required. It is the real deal, consistent side effects and all.
I would really like to share the details of this site if I am allowed in case it helps anyone else who is struggling to obtain some for a trial. Is this permitted?
B xxxMay 31, 2017 at 4:44 pm #6173
I’m fine with it, Bombshell, with the caveat that a prescription *should* be required.
There are some horror stories about on-line pharmacies, but my personal experience has been mostly good.
🙂July 9, 2017 at 5:53 am #6184taa2Participant
Dr. Diana Driscoll,
I suffer from extreme chronic fatigue, have EDS- hypermobile type and CFS, have tried literally everything and nothing is helping. I was wondering is diamox useful for treating chronic fatigue if the cause of the fatigue is the lack of drainage from the brain? I constantly feel my sinuses and brain is full of fluid and the worse it is the worse my fatigue is, but I have no pain whatsoever. Do you think a trial of diamox for me may be beneficial? I have never had an MRI done, but my family member has chiari malformation and had surgery for it. Thanks,
TareqJuly 9, 2017 at 9:53 am #6185
Hi Tareq, I would absolutely encourage your doctors to help you with a trial of Diamox and a brain MRI. To date, every person we’ve seen with even a small Chiari at POTS Care, has experienced some dramatic improvements with Diamox (even elimination of the Chiari in a couple of cases). Quite a few patients were able to avoid neck fusions, too. The next step is to focus on what has made the intracranial pressure increase. If you are like many of us, there are often underlying causes of the increase in pressure that tie in with chronic fatigue. It can be tough to figure out, but absolutely worth it! Meanwhile, Diamox can significantly improve your quality of life, if you are affected by high pressure. Hang in, my friend.September 13, 2017 at 3:26 pm #6199
Hello sorry I have not been on here for a while. I would like to share the details of the online pharmacy I used to buy diamox without a prescription, in case it helps anyone who is struggling to obtain a short trial. I am in the UK and recently ordered from
it was delivered promptly, just as ordered and genuine quality, typical diamox side effects to boot.
I am not advising anyone to obtain medicine without a prescription, just stating what I did.September 13, 2017 at 3:32 pm #6200
PS when using diamox for presumed raised intracranial pressure in POTS, do people always take it on a regular basis or “as required” when your headaches are particularly bad? I struggle with severe orthostatic intolerance & have never taken diamox consistently due to this. When I have been desperate enough to take it I have always used strong painkillers as well so cannot be certain which to credit in helping the headache.September 13, 2017 at 6:11 pm #6201
As needed works fine! 😉
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