NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Our new wonderful helper!
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EDS99.
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December 4, 2012 at 10:50 pm #363
Dr. Diana
KeymasterHello, my friends! Can I please introduce you to Sarah, our new wonderful helper? She’ll respond to this intro with her user name, etc. Please feel free to contact her if there is anything you need, if you have problems with the site, if you need your windows cleaned — WAIT! She’s waving at me. No, apparently you’re on your own with the windows. But most everything else, she will be the go-to person while I get the MASSIVE amount of work ready for our trials. Cool? Please say “hi”! 🙂 Diana
December 5, 2012 at 1:26 pm #3196Sunshine
ParticipantHello, my friends! Can I please introduce you to Sarah, our new wonderful helper? She’ll respond to this intro with her user name, etc. Please feel free to contact her if there is anything you need, if you have problems with the site, if you need your windows cleaned — WAIT! She’s waving at me. No, apparently you’re on your own with the windows. But most everything else, she will be the go-to person while I get the MASSIVE amount of work ready for our trials. Cool? Please say “hi”! 🙂 Diana
Hello! My name is Sarah, and I am Dr Diana’s new assistant. I wanted to formally introduce myself to all of you and to tell you how excited I am to be working alongside such an amazing person whose heart beats to help those like herself who are chronically ill. Let me tell you from this side, I am simply amazed that she has come this far, basically, as a one-woman operation. She would say, however, (and I strongly agree)that she would not be where she is today without her amazing volunteers! And she is so very grateful!!
The thing is, at this stage in the game, we REALLY need more manpower, more people willing and able to help in various capacities, so that we can really push forward more quickly. We understand what it is like to live with chronic illness and know firsthand the importance of taking care of ourselves the best we can. So, understandably, there will be times when volunteers can’t help as much depending on their physical states. And that is perfectly okay. This is all the more reason for us to have as many people on our “helpers” list as possible. That enables some to fill in the gap when others aren’t feeling so strong. So, if you are interested in volunteering, please contact us at volunteers@prettyill.com and complete the volunteer form, as well. We would love to have you on board as part of the team!
On a final note, may I say that you are all heroes in my book, fighting and surviving, though the road traveled is unknown and treacherous most of the time. I have been there myself, and still am to some degree. Living with chronic illness is no easy task, but is definitely one of life’s great teachers! Hang on; there IS hope! Science takes time and money. That’s where donations and fundraising come in, as well. We definitely need to get some help in that area! Dr. Diana and her husband have personally funded the 2 million spent so far. That just doesn’t normally happen in the world of science! That truly shows their level of commitment though, doesn’t it? So, if you can assist with donations and fundraising, that would be so appreciated! The good news is, you have a brilliant doctor who is working fervently toward finding a cure. She will not stop until she sees this through until the end! We WILL get there! And with your help, we’ll get there even sooner! Thank you all for your consideration and your willingness to join the team effort! Take care!
In hope and health,
SarahDecember 6, 2012 at 5:42 pm #3198Barbara
ParticipantHi,
Had a thought about fundraising. In the UK we have websites like http://www.easyfundraising.org.uk, where you can nominate a charity and anything you spend on the internet, which is accessed through their site, attracts a certain percentage of commission so to speak, which is then paid into the nominated charity’s account. It’s only bits n bobs but it soon mounts up. The trouble is, you can only nominate UK charities.Does anyone know of this type of website that works on a worldwide basis to credit “worthy causes” ?
Regards
Barbara
(UK)December 10, 2012 at 1:37 pm #3206PalominoMorgan
ParticipantWelcome.
December 12, 2012 at 9:55 pm #3210sarahdionna
ParticipantThanks for helping out Sunshine! I will be thinking of fundraising things, but I think making up T-shirts would be pretty cool. We could sell them from the site and maybe some of us can advertise them on our other social media sites like facebook, twitter, youtube, reddit, etc. If anyone is interested, I can work on some designs and I would encourage others to work on designs as well and then we pick a winner or two.
December 12, 2012 at 9:58 pm #3211sarahdionna
ParticipantI would even pay for a percentage of the T-shirts that are made up, so every dollar spent of that percentage would go to The Driscoll Theory research and such. I know of a place that does a great job on the T-shirts and I could mail them out to people once they are made up.
December 22, 2012 at 6:35 pm #3236EDS99
ParticipantWhat about grant writing? Is there any of that being done or is desired?
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