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I suffer from presumed mast cell activation, as well as Pots and CFS. I have also been diagnosed with what my doctors call an idiopathic autonomic neuropathy. Several days ago I began Parasym Plus, and within an hour I noticed that I was very calm and collected. Over the past several days I have been experiencing several new symptoms such as muscle soreness and left kidney area soreness, as well as a slight burning urination. I’m worried that these symptoms could develop into something much worse, but am also hesitant to stop medication as I have noticed great improvement in sleep, digestion, and my severe flushing symptoms. I’m not sure if the pain is in my kidney or lower back and the internet hasn’t helped much. I guess I just made this post to see if these side effects could have been caused by Parasym plus or if they are unrelated.
Hello.
Let me first of all say that I have just sent for some PP, so I’ve yet to try it. I have EDS, ME/CFS, POTS and whole body neuropathic pain(which is related to these conditions and is not idiopathic) and possibly MCAS and or HI. I am having such a rotten time at the moment with GI issues and food/drug sensitivities, that I had to do something as my doctors are pretty clueless.
I tried the H1 and H2 meds to trial for two weeks to see if I have MCAS/HI and after four days have been so ill, I had to stop. I feel so sick and fluey and my GI is going nuts. I will be trying the PP very soon and I hope it works for you and me. Hopefully someone will be able to advise, as obviously I cannot, but your diagnoses sort of clicked with me!
Good luck and I hope in the longer term you find some relief.
I think the side effects may have been from me taking too much too soon. I was very eager to get the benefits, and on the first day when I noticed that two had helped, I took three later that same day. I think this led to a possible overdose? I’m not really sure, but either way, I’m going to stop taking it for a few days and see if my side effects go away
On a different forum I read that many people experience muscle soreness and drowsiness when they combine these choline supplements, so I’m going to attribute it to that. Also, I have made an appointment to have my kidneys checked out as I’m still worried about that. If you can learn anything from me, I would suggest starting slow, 1 per day, or 2 max, and see how you feel from there
I’m not sure if I have the same problems as you however. I definitely don’t have EDS, in fact I would say I am the opposite of hyper mobile, and my POTS is not the hyperadrenergic kind that is typically associated with mast cell disorders. Like you I haven’t been clinically diagnosed with Mcas or Histamine intolerance. I assume I have it as their really isn’t anything else that would cause me to flush bright red all of the time
Anyways, good luck with your treatment, and if you notice any problems post back here so we can compare notes
I think I am very sensitive to the PP. If I take two capsules I get very dizzy. My body feels disoriented for a while.
Not sure what that means?
One capsule seems to be okay.I think the side effects may have been from me taking too much too soon. I was very eager to get the benefits, and on the first day when I noticed that two had helped, I took three later that same day. I think this led to a possible overdose? I’m not really sure, but either way, I’m going to stop taking it for a few days and see if my side effects go away
On a different forum I read that many people experience muscle soreness and drowsiness when they combine these choline supplements, so I’m going to attribute it to that. Also, I have made an appointment to have my kidneys checked out as I’m still worried about that. If you can learn anything from me, I would suggest starting slow, 1 per day, or 2 max, and see how you feel from there
I’m not sure if I have the same problems as you however. I definitely don’t have EDS, in fact I would say I am the opposite of hyper mobile, and my POTS is not the hyperadrenergic kind that is typically associated with mast cell disorders. Like you I haven’t been clinically diagnosed with Mcas or Histamine intolerance. I assume I have it as their really isn’t anything else that would cause me to flush bright red all of the time
Anyways, good luck with your treatment, and if you notice any problems post back here so we can compare notes
Hello. I think I will take one to see if I can tolerate the PP. I was originally diagnosed with ME/CFS many years ago and it wasn’t until this last couple of years that I have the diagnoses of EDS and POTS. It’s taken decades to get there. I think the EDS link is paramount for me. I wasn’t aware I had it as I haven’t had regular dislocations etc. My cardio thinks my POTS is linked to CFS and deconditioning, but I don’t see that as I was very active prior to POTS developing. I think the CFS is part of the whole condition and came on after EBV. I flush red and have lots of food and drug sensitivities. My GI plays up and my whole body suffers.
Good luck with your trial and I will update when mine comes from the US.
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