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Yes I can imagine, it’s a shame so many people have to go through it. That’s terrible the way you have been treated 🙁
I don’t blame you wanting to avoid London, I wish I had done the same, I would rather travel further to have to go into London as it’s just so stressful. Where about’s are you based if you don’t mind me asking? I am in Colchester, Essex.
I haven’t read Dr Diana’s book as yet, but I will download it soon 🙂 Yes I think all doctors should give it a read!
Thank you so much, that’s very kind, I just couldn’t sit around and accept a condition that I really didn’t feel was what I had.
Hi Sarah, I am in Chatham in Kent. If you are ever over this way you are very welcome to pop in for a cup of tea. ☺
When you get the neck pain do your neck and shoulder muscles feel tight and stiff? I discovered something bizarre a few days ago that helps with that. I got some wrinkle freeze serum from Amazon with synthetic snake venom that is supposed to work like botox without the needles. I suddenly had an idea to try rubbing it into the back of my neck and shoulders and it helps much more than deep heat or all the other creams I have tried. It is bizzare really.
That is very kind, thank you 🙂 I am not often in that direction though. I get stiffness in my neck but haven’t had it in the shoulders. Wow that is interesting, I didn’t even know that existed, I may have to give that a try.
Keep in contact and let me know how you get on with the cardiologist, wishing you lots of luck.
Thank you and lots of luck to you too. I would love to hear how you get on and if you get any improvement. The serum has helped most days with the stiffness but not stopped it entirely on the worst days, although I think without it I would have been much worse. I haven’t had a migraine for a week so that’s a bonus. Just wish I could do something about feeling so weak, faint and exhausted.
Take care, Anna. X
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross