- This topic has 1 reply, 1 voice, and was last updated 8 years, 8 months ago by .
- You must be logged in to reply to this topic.
I know that many with EDS have POTS but I have been reading a lot lately about , what docs call Autonomic Neuropathy and it sounds a lot like POTS only it is usually secondary to other systemic disease ie.. Cancer, diabetes, etc… I read that many times it is the presenting symptoms of a hidden cancer that can be difficult to find. Has anyone ever encountered this or familiar with this?
Hello thedales…. there are different types of POTS, but I do have the type that can sometimes be confused with Neuroendocrine tumors. Family history and testing can pretty much clarify which is which.
Many times, folks are not aware of the POTS subtypes, so leaving a link to a paper that explains. There 2 broad categories, Primary and Secondary.
Hope this helps.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross