- This topic has 5 replies, 4 voices, and was last updated 10 years, 5 months ago by
.
-
Posts
-
Hi Diana,
Just wanted to wish you good luck! You go girl!
One thing though: you may want to include a disclaimer in your videos just before you start showing the funny stuff. Your sense of humor isn’t healthy for my poor EDS yaws 😉
Kate
Why, was something funny at the end? HA! Thank you, my friend. We’ve got to keep laughing, right? 🙂
H! I am ready to go! I have one for each day! I have called the office to set up a time or something like that.
Thanks for all the hard work you do!I’m the POTS/Dysautonomia/EDS type. 🙂 I will be in Colleyville (with bells on) Monday Tuesday and Wednesday. Put me where you need me.
BTW, I’ m soooooooooo excited!!!!!!
These tests really are at no charge for you, the patient, but I will be grateful for any and all fund-raisers we can pull together! Please help me reach the chronic fatigue, chronic Lyme, rheumatoid arthritis and chronic endometriosis folks, too (we seem to have lots of EDS/POTS/dysautonomia folks — imagine that!). If you can’t participate, don’t get discouraged. These tests will expedite our treatment trials. Please check it out! Information can be found under “Articles and Handouts” on the right side of the front page. 🙂
Hi Everyone, I believe I was able to circle back with everyone. Thank you! It looks like we are FULL for the pre-clinical testing for EDS/dysautonomia. I could use maybe one more M.S. patient and 1-2 Lyme disease patients, and maybe one more rheumatoid arthritis patient. If anyone in your family qualifies, could we consider them? As you know, there is a considerable amount of overlap in our conditions within our own families. Thank you so much, my friends! Anyone else with EDS/dysautonomia or not, I will continue to gather names and contact info for treatment trials, OK? Thank you so much!! This is getting exciting! 🙂 Diana
- You must be logged in to reply to this topic.