June 9, 2013 at 8:32 pm #460
I have had tail bone pain for several months. It is an ache in the tissue around my tail bone. It is a constant pain in my …well you know. Anyone else with this? What helps? Thanks.June 10, 2013 at 12:32 pm #3736
Thanks. I wish I could take a bath, but I have mobility problems and an open abdominal wound. As soon as it is healed I will try swimming again. Maybe that will help. Do you know what triggered your pain and what finally broke the cycle?June 10, 2013 at 1:07 pm #3737Dr. DianaKeymaster
I had an EDS friend who used to fly a lot and his tail bone basically slipped out of place. They were able to push it back in place (but he said, it wasn’t pretty!). On airplanes, I, too use a special cushion (it is U-shaped and I leave it open in the back. It can also be bent into different shapes to be used as a neck brace, pillow, etc. WAY cool gift from my hubby.June 10, 2013 at 8:53 pm #3746BarbaraParticipant
I have the tailbone pain too, hurts when you’re sat down, hurts more as you stand up, then hurts more again as you’re sitting down. I’m a wheelchair user (but like to keep standing up – to make sure I can!) and I find a lumbar support (a long cushion with a ‘D’ profile) placed flat side down, along the front of my chair, so it sits under my thighs towards my knees, relieves some of the pressure on my tailbone. I also sleep on a horseshoe shaped cushion. I use heatpads during the day to ease it but nothings got rid of it completely. Regarding the pads, recently my osteopath said it’s ‘heat for muscles’ and ‘cold for bones’, so maybe I should be using cold!
(UK)June 10, 2013 at 10:55 pm #3749
I have the same problem. It hurts no matter what, and that is the most frustrating thing about it! I will try to find one of the pillows everyone uses. I have tried the heat and cold too, but all it seems to do is create a distraction. I hate that it wont let up. I too am trying to stay ambulatory. I know I will one day be in a wheel chair too. It is hard when your body is falling apart.June 10, 2013 at 10:56 pm #3750
Where did your hubby buy the pillow?June 13, 2013 at 11:20 am #3765
U don’t have to soak your whole body in the epson u can soak your feet and your body will still get the magnesium absorbed in. If u have diabetes u may not be able to use epson if not then go for it. Have u read the article on this website The Magic of Magnesium? Magnesium heals! It’s essential for EDS. I take it orally also. If u don’t mind me asking y the open abdominal wound? Also, don’t think like that that u will end up in a wheelchair or your mind will put u there. There’s hope! I know u don’t feel that way right now but u will especially when u get in that pool. We moved from California to Texas because we couldn’t afford to live in California without me working but we got a house with a pool and it’s helping me. I make myself get in it every day even if I don’t feel like it and I always feel better after. I can stretch and loosen my stiff body in the water.don’t give up in your mind or your body will too. God bless you!
I will try the foot soak. I have not read the article yet, but I will. I use Epsom salts on my roses and palms because the magnesium is good for them. I love to garden and it is becoming so hard for me to do.
When I started to have severe mobility issues 7 1/2 years ago I was told by my orthopedic at that time to move. We were in a two story and I could not handle the stairs. He told me to find a one story with a pool. I have always been a swimmer so I am thankful we found a house, and in our same neighborhood too. I can’t wait until I am healed and can swim again!
I recently had hernia repair surgery. The incision open up on me. It is actually the second time an abdominal incision opened on me. I did not realize until last month that it was because of my EDS. I am new to EDS, but I have been sick for a long time. Now it all makes sense.June 13, 2013 at 1:46 pm #3768BarbaraParticipant
U don’t have to soak your whole body in the epson u can soak your feet and your body will still get the magnesium absorbed in.
This is a good tip, I know my magnesium is lacking. I was advised to have Magnesium injections but GP wouldn’t give them, have tried the oil based skin spray but I’m not suited to it and so I tried the Epsom Salt baths but it also made me itchy, I don’t think having dry skin helped, so the foot soak might be the answer! Thank you.
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