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As a POTS/EDS patient, I am writing to inform others that the 2016 CDC guidelines for pain management suggests to primary care physicians that pain patients be drug urine tested. There is an open comment period at the CDC until January 13, 2016.
I will refer to what is written at: https://www.inspire.com/NetiNeti/journal/cdc-requests-pcps-mandate-drug-urine-test-for-all-pain-patients/ for a complete summary with links and quotes to how drug urine tests can lead to false positives and false negatives.
Within the guideline, not just the summary, it states that pain patients should be tested at least annually, but encouraged for more frequency, even discussing taking random urine samples at each visit and than testing as a PCP deems necessary. The guideline discusses how insurance may not pay for these tests. This is an under discussed issue, a civil rights/constitutional issue, and the ACLU has taken this up when government or medical boards have requested ‘required’ testing….the guidelines do not inform how patients can refuse, and generally one can assume this is required in action but not in name.
for POTS/EDS patients, there are also concerns about other guidelines, such as restricting or prohibiting pain medication for patients with “sleep disordered breathing”, which can range from obesity to asthma/allergies, to sleep apnea and there have been studies that EDS and POTS have breathing difficulties at night. It could be the easy opt-out for a doctor that does not understand pain in regards to our condition.
Copy paste:
This link will provide the landing page that allows you to read submitted comments and find more information, such as the full regulation (direct link is above, earlier in this post) and other details.
Federal Register Notice: Proposed 2016 Guideline for Prescribing Opioids for Chronic Pain
http://www.regulations.gov/#!documentDetail;D=CDC-2015-0112-0001THIS IS THE DIRECT LINK TO MAKE A COMMENT TO CDC.
http://www.regulations.gov/#!submitComment;D=CDC-2015-0112-0001
YOU WILL INSTANTLY GO STRAIGHT TO THE COMMENT PAGE FROM THE ABOVE LINK. YOU DO NOT NEED TO ENTER OR DESIGNATE ADDITIONAL ROUTING INFOThis is a good reference too:
http://www.painnewsnetwork.org/search?q=cdc
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