NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › The Chronic Fatigue Element
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AuthorPosts
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March 23, 2013 at 11:21 am #3557BarbaraParticipant
Hypochlorhydria Test – to see if I was producing sufficient stomach acid to digest my food properly
I had to stop the Zantac for 5 days before this test, which believe me wasn’t easy, as my heartburn issues soon returned but I persevered and the result for this test came back as follows:-
My result 860 pg/ml Reference range 930 – 2050 pg/ml
So I had low stomach acid, then why did I get heartburn, well my thoughts on it are this. The contents of your stomach have to reach a certain level of acidity before the sphincter will open and allow it to pass through to the next stage. So was my heartburn, the result of my stomach’s last ditch attempt, to get up to that acidity level, so the sphincter would open ?
If you think this is happening to you, you can help increase the acid level in your stomach by drinking Vitamin C with your meals, either effervescent tablet, or for example orange juice, apple juice, etc. Just make sure it’s not a ‘juice drink’ as this would contain extra sugar (not good!).
Regards
Barbara
(UK)June 11, 2013 at 4:51 pm #3760BarbaraParticipantI promised to inform you of the results of my:
Translocator Protein Test – looks at why ATP (the energy currency) is not getting out of my mitochondria efficiently.Which is as follows:
“B has abnormalities to her Translocator Protein function, in the form of oxidative damage, secondary to the presence of toxins, high levels of aldehydes and low normal pH at the outer membrane (wait for it) which is probably a contributary cause of her muscle pain”.So, just gotta sort that out as well then!
Barbara
(UK)June 11, 2013 at 4:58 pm #3761BarbaraParticipantHypochlorhydria Test – to see if I was producing sufficient stomach acid to digest my food properly
the result for this test came back as follows:-
My result 860 pg/ml Reference range 930 – 2050 pg/ml
So I had low stomach acid!
This is where it gets interesting, to quote:
“Failure to produce sufficient stomach acid, results in foods being inadequately digested and therefore presenting an antigenically interesting load, with the potential to switch on allergy”, Dr Myhill goes on to say “if foods cannot be digested and assimilated, then healing and repair fails as well” – so this is quite an important factor to get put right.
Barbara
(UK)September 6, 2013 at 8:38 pm #4304BarbaraParticipantThyroid test – to see how efficiently my thyroid was working.
I’ll let you know how I got on.
Regards
Barbara
(UK)Upon revisiting this topic, I realise I never told you my Thyroid test results – BUT told you the Stomach acid test results twice, blooming short-term memory problems kicking in again, sorry!
Anyway, back to Thyroid well according to my blood test results, my Free T4 was 12.6 (normal ref range 12.0 to 22.0 pmol/l)
. . . which showed that my Free T4 was sitting right at the bottom end of normal range, with a raised TSH of 3.35. I live in the UK but apparently, if I lived in America, I would probably have been started on Thyroid hormones, since their threshold for TSH is only 3.0 – so unfortunately, I’ve been unable to obtain any treatment for this yet.
Regards
Barbara
(UK)September 6, 2013 at 8:43 pm #4305BarbaraParticipantHi Diana,
You said . . .Hey, Barb,
I think many of us have or seem to have mitochondrial disorders (as do our brothers and sisters in fatigue). I think I know why this is happening… It’s next in line for research. I was able to reverse it in myself and my kids…………So, if our fatigue’s source is similar, we may be able to reverse this (the medication is by prescription, with a couple of supplements thrown in for the brain fog), and literally, I was BACK in 48 hours.
DianaAre there any dates in the pipeline for this info being released please?
Barbara
(UK)September 8, 2013 at 3:14 pm #4310Dr. DianaKeymasterThyroid test – to see how efficiently my thyroid was working.
I’ll let you know how I got on.
Regards
Barbara
(UK)Upon revisiting this topic, I realise I never told you my Thyroid test results – BUT told you the Stomach acid test results twice, blooming short-term memory problems kicking in again, sorry!
Anyway, back to Thyroid well according to my blood test results, my Free T4 was 12.6 (normal ref range 12.0 to 22.0 pmol/l)
. . . which showed that my Free T4 was sitting right at the bottom end of normal range, with a raised TSH of 3.35. I live in the UK but apparently, if I lived in America, I would probably have been started on Thyroid hormones, since their threshold for TSH is only 3.0 – so unfortunately, I’ve been unable to obtain any treatment for this yet.
Regards
Barbara
(UK)Wow, I’ve seen ranges change between labs, but never between countries!!! Some doctors here will go ahead and give Synthroid a whirl and see if it helps the patient,thinking that perhaps the ranges are too strict. But be careful – too much supplementation can contribute to osteoporosis. It’s a tight-walk! Say, did you ever figure out what the HECK your mito report meant? Google Scholar to the rescue? 😉
September 8, 2013 at 3:18 pm #4311Dr. DianaKeymasterHi Diana,
You said . . .Hey, Barb,
I think many of us have or seem to have mitochondrial disorders (as do our brothers and sisters in fatigue). I think I know why this is happening… It’s next in line for research. I was able to reverse it in myself and my kids…………So, if our fatigue’s source is similar, we may be able to reverse this (the medication is by prescription, with a couple of supplements thrown in for the brain fog), and literally, I was BACK in 48 hours.
DianaAre there any dates in the pipeline for this info being released please?
Barbara
(UK)Not yet, Barb! I’m overwhelmed trying to complete the CURRENT studies! I’d love to see a huge cash infusion from Heaven above, so I could get some help! It is exhausting, as you can imagine… And the kids are starting back to school. Our back to school list is a bit different from most: paper, pens, backpacks, MRI’s, blood work… You know! 😉
September 8, 2013 at 6:35 pm #4312BarbaraParticipantSay, did you ever figure out what the HECK your mito report meant?
Yes, I did, for the most of it, basically I was very deficient in several vitamins and minerals, despite eating a healthy diet – probably due to the gastro-intestinal problems (that many of us seem to suffer) leading to malabsorption of nutrients.
These deficiencies impacted on the way my body worked (or more to the point ‘struggled’, at cell level). It was slowing down, or interfering with several ‘everyday’ bodily processes, which led to things not working properly or breaking down.
In addition, despite being troubled with what I thought was excess stomach acid problems (GERD), in reality I wasn’t producing enough stomach acid to digest my food properly, I will quote what it says in the report:-
“Failure to produce stomach acid results in foods being inadequately digested and therefore presenting an antigenically interesting load, with the potential to switch on allergy” – so there you have it, no wonder we need the z/z protocol!
I still have not managed to get a lot of the treatment prescribed from my GP, our DoH (Department of Health) still treat fatigue as a psychological illness – and offer ‘Cognitive Behaviour Therapy’ and ‘Graded Exercise’!! How that’s going to help a gross vitamin and mineral deficiency, heaven only knows – it’s barmy!!
If only my GP was allowed to prescribe it, it would be free (on the NHS) so it’s a pity. Although he has given me some of the treatment, I have been left to buy the rest myself (which I haven’t done in total as yet – but I’m still working on it). Forever the analyst, I wanted to introduce each one separately (where I could), so that I could see which offered the most improvement.
I have made an appointment to see Dr Myhill in person next month, I’m hoping she’ll be able to look at my physical progress and help me further. Her recommendations, as per her website, make a lot of sense to me, I have carried out my own research too and so far can’t fault her. It’s a 3 and a half hour car journey each way to her practise, so I won’t be looking forward to that but hopefully the end result will be well worth it.
Regards
Barbara
(UK)
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Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; GERD; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Mild Scoliosis; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy); Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium) deficiencies, CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies; Myalgic Encephalomyelitis (M.E.) . . . . and now Growth Hormone Deficiency (due to flattened Pituitary Gland)!September 8, 2013 at 8:59 pm #4313Dr. DianaKeymasterWell, anything beats “Cognitive Behavioral Therapy”! *eyeroll* 😉 Let us know?
September 12, 2013 at 12:01 am #4327BarbaraParticipantMy main reason for going to see Dr Myhill is to discuss ways of getting my magnesium levels sorted, along with some of the other mineral deficiencies, as I wasn’t suited to the transdermal spray applications.
Talking of magnesium levels, I don’t know if I’ve mentioned this before but I’ve recently re-read studies linking hypomagnesaemia (too little magnesium in the body) with hydrocephalus, hmmm, curious. The very good news is that it’s probably reversible!! yey!!
Regards
BarbaraSeptember 12, 2013 at 10:42 am #4329Dr. DianaKeymasterMy main reason for going to see Dr Myhill is to discuss ways of getting my magnesium levels sorted, along with some of the other mineral deficiencies, as I wasn’t suited to the transdermal spray applications.
Talking of magnesium levels, I don’t know if I’ve mentioned this before but I’ve recently re-read studies linking hypomagnesaemia (too little magnesium in the body) with hydrocephalus, hmmm, curious. The very good news is that it’s probably reversible!! yey!!
Regards
BarbaraHi Barb, I would love to see the articles about magnesium and hydrocephalus? If it is an “associatio”, I get that! If there’s a causal relationship, I’d LOVE to learn more! Thanks, Hon! 😉
September 12, 2013 at 6:43 pm #4333BarbaraParticipantWell I’ve read a few that talk about an association of low magnesium to hydrocephalus. This first one, in the British Medical Journal, talks about external hydrocephalus and hypomagnesaemia (and rapidly growing skulls in children):-
http://adc.bmj.com/content/81/6/505.full.pdf
Others, such as the following one, talk about how treating hydrocephalus in rats using magnesium, offers mild benefit
http://www.ncbi.nlm.nih.gov/pubmed/12621098
A 1925 paper in The Journal of the American Medical Association, talks about how they successfully treated Intracranial Pressure with magnesium sulphate.
http://jama.jamanetwork.com/article.aspx?articleid=235217
So, it’s not a new thing but it could be a promising thing.
There are however some reports that disagree with certain levels of magnesium being beneficial, so it needs looking at in depth.
Regards
Barbara
(UK)September 12, 2013 at 10:09 pm #4337Dr. DianaKeymasterHoly cow, Barbara! That’s amazing! Where do you find these rather obscure articles?! It’s intriguing because we all tend to be low in magnesium. Personally, I’m drowning in the stuff, and still have to treat the hydrocephalus, but I wonder how many of us could have been helped as babies/kids? Hmm… I agree that it needs further work, but if I had a baby today (that’s funny), I would ask for a check of their magnesium levels if they showed large heads (above 90th percentile or so). What would we have to lose, right? Thanks for sharing this FASCINATING stuff! And don’t you love those VERY OLD articles? They’re like antiques! Love it! 🙂
September 13, 2013 at 11:04 am #4344BarbaraParticipantA lot of our body pain and discomfort is caused by the hydrocephalus (excess CSF fluid on the brain). This fluid subtly compresses the brain and intereferes with normal function. There are two specific areas that contribute directly to the pain we feel. One is a band across the top of our brain (from side to side) that monitors and controls the sensations felt in parts of our body, the hands, arms, shoulders, legs, etc., it’s called the Primary Somatosensory Cortex – which is probably compromised by the excess fluid above it. The other area is at the bottom of our brains, in the cerebellum (the hind-brain) which as we know, is being pushed towards the Foramen Magnum (hole in the bottom of the skull where our spinal cord comes though) and it is being gradually compressed.
So, if Magnesium is the link to reducing this subtle compression then we need to know more about how to get it into our system. So, here’s a bit more on Magnesium:-
For example, Magnesium is in the following foods in various amounts:
Nuts – Almonds, Cashew Nuts, Peanuts (and peanut butter)
Vegetables & pulses – Spinach, Black Beans, Kidney Beans, Brocolli, Jacket Potato
Cereals – some Breakfast cereals, Brown Rice
Fish & Meat – Salmon, Halibut, Chicken, Ground Beef
There are lots of others, this is just a ‘taster’ so to speak!If you can get it from your diet it’s all well and good but the truth of the matter is, many of us are well depleted and probably not getting nearly enough. We can take Magnesium Supplements orally but they have the often undesired effect of loosening the bowel (ok for those with constipation though!)
So, what are we left with, well we can absorb it through our skin and, when applied this way, we don’t have the undesired bowel effects, or the extra stress on the liver. The obvious way is to take a bath in ‘Epsom Salts’, or if you don’t have the energy for a bath, there was a very good suggestion on this forum to take foot-baths using Epsom Salts.
For those of you who can tolerate oil, you can obtain Transdermal Magnesium Spray in the UK from Dr Sarah Myhill’s website:-
http://www.drmyhill.co.uk/wiki/Minerals_and_vitamins_delivered_through_the_skin
Or, I’ve read that you can make your own ‘Magnesium Cream’ (though I haven’t tried this yet!):-
Mix a tablespoon of epsom salts, using as little cooled pre-boiled water as possible, until it dissolves, then add this slowly to some Aqueous cream, or similar and apply directly to the painful area (or to the arms, legs or whatever, if you’re not in pain). I’m gonna give it a go though.
Hope this helps,
Regards
Barbara
(UK)September 16, 2013 at 8:27 pm #4351AnnealParticipantHi all, I’m new.
Regarding magnesium I just learned about a form called Magnesium L-threonate. Here is a quote from Jarrow’s product: “Magmind (magnesium L-threonate, or magtein) is the only form of magnesium that has been shown by promising research to readily cross the blood-brain barrier and provide significant positive effects on cognition, memory and brain health. Magmind may also improve relaxation and sleep quality.”
Also interesting comments in the review section of this product.
I’ve always craved magnesium. Perhaps this form will get rid of my headaches?Ps- Recently learned I have hypermobility syndrome and am starting to research about it. Thanks for all this information.
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