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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Thoughts?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Thoughts?

  • This topic has 2 replies, 2 voices, and was last updated 5 years, 10 months ago by HarleyQuinn.
Viewing 3 posts - 1 through 3 (of 3 total)
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    Posts
  • May 16, 2017 at 11:28 am #1115
    HarleyQuinn
    Participant

    Hey all,

    I am diagnosed with a 8mm Chiari malformation herniation, but I’m 99.999999% certain I also have C1-C2 instability, because they move and click and when I don’t un-mess them I pass out.

    Any thoughts appreciated.

    Attached files

    May 28, 2017 at 7:55 pm #6171
    Barbara
    Participant

    I see a couple of indicators of instability and a couple of anatomical variants which further add to the problem.

    First the indicators of instability:-
    C. Looks to me like the posterior longitudinal ligament has stripped away from the back of C2.
    This ligament is the black line that grips all the vertebrae and holds them firm.
    There should be nothing between that black line and the bone.
    D. Looks to me like the posterior arch of C1 is jutting further than it should into the spinal canal.

    Second the anatomical variants:-
    A. You may have a short clivus (the bone to the front of the opening in your skull)
    B. You have a retroflexed odontoid
    Do a search in the box above for further information on each of these two variants.

    Attached files

    May 29, 2017 at 10:25 am #6172
    HarleyQuinn
    Participant

    I see a couple of indicators of instability and a couple of anatomical variants which further add to the problem.

    First the indicators of instability:-
    C. Looks to me like the posterior longitudinal ligament has stripped away from the back of C2.
    This ligament is the black line that grips all the vertebrae and holds them firm.
    There should be nothing between that black line and the bone.
    D. Looks to me like the posterior arch of C1 is jutting further than it should into the spinal canal.

    Second the anatomical variants:-
    A. You may have a short clivus (the bone to the front of the opening in your skull)
    B. You have a retroflexed odontoid
    Do a search in the box above for further information on each of these two variants.

    Thank you so so much! See, I saw all these things, knew they weren’t ”right” but didn’t know what to call them. Now I can draw attention to them when I hit the neursurgeon on the nose and call him bad… I mean uh… calmly request a reasessment of my case 😀

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