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My two sons and I are in the early stages of getting an EDS diagnosis. Unfortunately, my primary care doctor is leaning toward vascular involvement. We do not have an appt. with a geneticist until next year.
One of my sons was diagnosed with a bicuspid aortic valve almost three years ago. He was seeing a cardiologist because of unexplained dizzy spells. I am curious as to how concerned I should be? The pediatrician does not have any knowledge of EDS and does not seem concerned at all.
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