- This topic has 1 reply, 1 voice, and was last updated 4 years, 3 months ago by .
- You must be logged in to reply to this topic.
Update – be careful with neuroprotek
How did I get it so wrong! I have thoroughly read the Driscoll Theory but for some reason I thought because I’m hypermobile that I do not have histamine problems and that led me to the conclusion of mast cells. Wrong. leave it to say I had a terrible reaction with neuro protek I can provide details if anyone wants it but leave it to say it did not work for me and even put me into quite a downward spiral I have only been able to get out of by taking extra Diamox and H1 antagonist. I reread Driscoll Theory and I don’t know how I got it wrong about mast cells but anyway before taking neuro protek, if you are EDS, read Driscoll Theory again. Can you tell I’m pretty mad at myself!
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross