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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Vascular EDS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Vascular EDS?

  • This topic has 4 replies, 2 voices, and was last updated 10 years, 3 months ago by JessicaLeigh.
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  • December 29, 2012 at 2:37 am #376
    JessicaLeigh
    Participant

    .

    December 29, 2012 at 10:22 am #3268
    blue129
    Participant

    I’m not a geneticist and won’t play one on Pretty Ill, but I have visible veins all over–due to my pale skin, not VEDS. I have Hypermobility type. The geneticist will know the difference when they see you and will let you know. Regarding your ulcers, do you have h. pylori or no?

    December 29, 2012 at 10:35 am #3269
    JessicaLeigh
    Participant

    .

    December 29, 2012 at 2:09 pm #3271
    blue129
    Participant

    I would honestly see a gastroenterologist if you are able, and see if you can rule out h. pylori bacteria as a cause of your ulcerations. It is responsible for most ulcers. That is why antibiotics are the treatment of choice for ulcers. When I had an ulcer, it was the first thing they checked for. I had been taking NSAIDs for a couple of years due to an automobile accident, and when I turned up negative for the bacteria, only then did they deem the medication as the cause, combined with low stomach motility.

    In any case, you will see that a lot of symptoms are common to quite a few different disorders–the key is in how they present. Knowledge is power, but try not to worry too much until you’ve seen the geneticist. A good one will check you for all connective tissue disorders :).

    December 30, 2012 at 1:48 pm #3273
    JessicaLeigh
    Participant

    .

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