- This topic has 4 replies, 2 voices, and was last updated 10 years, 3 months ago by .
- You must be logged in to reply to this topic.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Vascular EDS?
I’m not a geneticist and won’t play one on Pretty Ill, but I have visible veins all over–due to my pale skin, not VEDS. I have Hypermobility type. The geneticist will know the difference when they see you and will let you know. Regarding your ulcers, do you have h. pylori or no?
I would honestly see a gastroenterologist if you are able, and see if you can rule out h. pylori bacteria as a cause of your ulcerations. It is responsible for most ulcers. That is why antibiotics are the treatment of choice for ulcers. When I had an ulcer, it was the first thing they checked for. I had been taking NSAIDs for a couple of years due to an automobile accident, and when I turned up negative for the bacteria, only then did they deem the medication as the cause, combined with low stomach motility.
In any case, you will see that a lot of symptoms are common to quite a few different disorders–the key is in how they present. Knowledge is power, but try not to worry too much until you’ve seen the geneticist. A good one will check you for all connective tissue disorders :).
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross