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MY six year old daughter i am confident will be diagnosed tomorrow with eds also. She has symptoms though that neither my son or myself have ever experienced one of these being vision issues. I have talked to her eye doc that did her exam and got her reading glasses and he just looked at me crossed eyed and did not understnad what i was trying to say. I wills tart by saying she has these amazing eyes very intense blue with very white outside. By evening the white parts are often pink. Not with veins everywere just pink. Any ideas about this and eds. I myself the only issues with eyes i have is extreme light sensitivity that seems to be getting worse with age that my doctors ignore when i bring it up. My grandfather who also had this issue started having his retinas detach for a unknown reason in hsi 70s he had it happen twice. They never figured out why they detached. so my question pink eyes with out being “pinkeye” any ideas
MY six year old daughter i am confident will be diagnosed tomorrow with eds also. She has symptoms though that neither my son or myself have ever experienced one of these being vision issues. I have talked to her eye doc that did her exam and got her reading glasses and he just looked at me crossed eyed and did not understnad what i was trying to say. I wills tart by saying she has these amazing eyes very intense blue with very white outside. By evening the white parts are often pink. Not with veins everywere just pink. Any ideas about this and eds. I myself the only issues with eyes i have is extreme light sensitivity that seems to be getting worse with age that my doctors ignore when i bring it up. My grandfather who also had this issue started having his retinas detach for a unknown reason in hsi 70s he had it happen twice. They never figured out why they detached. so my question pink eyes with out being “pinkeye” any ideas
Hello, my friend, Interesting… I’m assuming you have EDS? Your grandfather? It’s impossible to tell what is going on over the internet, but I wonder if her eyes bother her in the evening? Light sensitivity? Dryness? Itching? And how about YOUR light sensitivity? Are your pupils big, too? I assume that they ruled out uveitis, narrow angle glaucoma, dry eyes, the usual stuff? It makes me crazy to hear that doctors will often just REMAIN puzzled, and move on to the next patient… If EVERYTHING has checked out normally, but you or she develops dysautomomia, please join the trials coming up, OK? I think we can stop this… 🙂 Diana
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