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I never knew that about bladder and EDS! yet I have always felt it didn’t empty properly.
Also, never heard of mineral deficiencies as a cause of kidney failure. Can you tell me more about that?
I’d love to know more about how this affects each system and your research on it. Do you have it posted anywhere?mysticnightParticipant
You are SO right on! How do you know that? lol
I totally agree with you about the future of nutrition. the right supplements in the right form can help with so many things. the new medicine is nutrigenomics – the influence of nutrition on genes.
I did the 23andme genetic testing, and use high dose B’s. Lots of magnesium – epsom salts, supplements, and oil spray and it never feels like enough. I do sneak potassium, since my legs go stiff if I don’t take it, but it is ‘forbidden.’ Testing of it is normally a little low, but too high if I supplement. Some days I say “screw it” to all the restrictions because my body seems to need potassium, salt, fluids, and low protein to function.
To digress, its funny because this weekend was a ‘screw it’ weekend and i drank litres of water every day, ate tons of salt, felt amazing with lots of energy, and at dialysis, my weight and numbers were normal. lol, so ya gotta wonder some times.
Can I ask, why do you say that about potassium?
They don’t know what caused kidney failure. They don’t care. They suspect the urinary reflux I had surgery for 25 years ago. That doesn’t make sense to me, but it does when you consider EDS/POTS and bp fluctuations, which nephro denies I have.
Ever since I heard of chiari malformations, I have wanted a head MRI or CT scan! It explains a lot. Childhood killer headaches where i banged my head against a brick wall to help the pain. Then, and now, some mornings I wake up and can’t move my arms. Pain in the base of my skull with pressure out the top of my head – all my life.