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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Nici32

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  • July 21, 2016 at 5:54 am in reply to: EDS and marfanoid Body type #5993
    Nici32
    Participant

    Hi Dr. Diana,
    Thanks for your reply. I Try to enjoy my height and ignore
    the neck pain I got from it.

    July 2, 2016 at 3:31 am in reply to: Skin biopsy: indifferent diagnosis #5975
    Nici32
    Participant

    Hi Dr. Diana,

    thanks a lot for your reply. Yes, it is really difficult to get a proper diagnosis. I seem to be a mixture of different connective tissue disorders.I have marfanoid signs and crossover EDS signs. Now I am fighting for genetical testing. Ten years ago I was tested for Marfan Syndrome and Loeys- Dietz syndrome. The tests came back negative. I will see what the test says now. How was it with you? Did they find any genetical defects? You are diagnosed with the classical EDS- type, aren`t you?

    Have a nice weekend!

    Best regards
    Nici

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