Hi Dr. Diana,
Thanks for your reply. I Try to enjoy my height and ignore
the neck pain I got from it.
Hi Dr. Diana,
thanks a lot for your reply. Yes, it is really difficult to get a proper diagnosis. I seem to be a mixture of different connective tissue disorders.I have marfanoid signs and crossover EDS signs. Now I am fighting for genetical testing. Ten years ago I was tested for Marfan Syndrome and Loeys- Dietz syndrome. The tests came back negative. I will see what the test says now. How was it with you? Did they find any genetical defects? You are diagnosed with the classical EDS- type, aren`t you?
Have a nice weekend!
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