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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Nici32

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Viewing 2 posts - 1 through 2 (of 2 total)
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  • July 21, 2016 at 5:54 am in reply to: EDS and marfanoid Body type #5993
    Nici32
    Participant

    Hi Dr. Diana,
    Thanks for your reply. I Try to enjoy my height and ignore
    the neck pain I got from it.

    July 2, 2016 at 3:31 am in reply to: Skin biopsy: indifferent diagnosis #5975
    Nici32
    Participant

    Hi Dr. Diana,

    thanks a lot for your reply. Yes, it is really difficult to get a proper diagnosis. I seem to be a mixture of different connective tissue disorders.I have marfanoid signs and crossover EDS signs. Now I am fighting for genetical testing. Ten years ago I was tested for Marfan Syndrome and Loeys- Dietz syndrome. The tests came back negative. I will see what the test says now. How was it with you? Did they find any genetical defects? You are diagnosed with the classical EDS- type, aren`t you?

    Have a nice weekend!

    Best regards
    Nici

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This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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