I was living in the UK and was diagnosed with EDS 3 and POTS and I had an upright MRI in London. Even though I had symptoms of high ICP among other things even an upright MRI only which was designed to test CFS fluid didn’t show any issues. It might not be worth the money if you have to pay for it.
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross