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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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ttpookinz

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • February 20, 2014 at 7:17 pm in reply to: can anyone point me in the right direction #4890
    ttpookinz
    Participant

    I have an appt. with a neurosurgeon. Do you have any advice?

    February 17, 2014 at 1:59 pm in reply to: can anyone point me in the right direction #4885
    ttpookinz
    Participant

    Do you have Chiari Malformation as an official diagnosis? Do you think I would qualify for at least Chiari 0? I read some of your other posts. They are so informative. Thanks for being so giving with your time and opinions. I tried magnesium supplements, oils and baths about 2 years ago along with some natural antibiotics like colloidal silver and grapefruit seed extract. It almost killed me. I released so much toxins that I developed some kind of kidney stone and amazingly large tonsil stones. How do you clean your lymph system?

    February 17, 2014 at 8:35 am in reply to: can anyone point me in the right direction #4879
    ttpookinz
    Participant

    Is surgery the only option for relief? Are there operations where they just remove the pannus from the odontoid? The pressure in my neck is killing me. I can hear trapped csf as it gets released sometimes. The doctors think I am crazy. I am obese. But when this all started I was perfectly thin and super active. I have been asking doctors,chiropractors, massage therapist, acupuncurist, etc. to help me for 15 years. Nothing they have suggested has ever helped. Some of it has progressed my symptoms. They all think I have Fibromyalgia. Thank you for your time and your opinion.
    I have suspected I have basilar impression and chiari.

    February 16, 2014 at 7:39 pm in reply to: can anyone point me in the right direction #4871
    ttpookinz
    Participant

    I don’t have a mri of my head. I have mri of my thoracic and lumbar spine. I was in a car accident at 17 and started having the true pain at the age of 23. but now I look back and realize I had a heavy head feeling and neck problems since I was little. This MRI was done laying down. My chiropractor says that in my x-rays(which are done standing) that it looks like my spine is shoved into my skull.
    My left arm hardly works and hurts so bad. I haven’t been able to work in years because of all the pain and weakness in my upper body. my heart races when I sleep at night. I have eye disturbances. all kinds of issues but I can’t find a doctor to take me seriously. they all want to put me on antidepressants and I have already went down that road. It doesn’t help. Neurontin doesn’t help either. This mri was done in 2009. the main things on the report that were not mentioned to me at the time were borderline canal stenosis and hypertrophy on the atlantodens articulation. I am so curious to know what you or anyone else thinks of this mri. I suspect that my odontoid is pressing on something when I am in an upright position.

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