Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
I see a couple of indicators of instability and a couple of anatomical variants which further add to the problem.
First the indicators of instability:-
C. Looks to me like the posterior longitudinal ligament has stripped away from the back of C2.
This ligament is the black line that grips all the vertebrae and holds them firm.
There should be nothing between that black line and the bone.
D. Looks to me like the posterior arch of C1 is jutting further than it should into the spinal canal.Second the anatomical variants:-
A. You may have a short clivus (the bone to the front of the opening in your skull)
B. You have a retroflexed odontoid
Do a search in the box above for further information on each of these two variants.
Thank you so so much! See, I saw all these things, knew they weren’t ”right” but didn’t know what to call them. Now I can draw attention to them when I hit the neursurgeon on the nose and call him bad… I mean uh… calmly request a reasessment of my case 😀
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross