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MGCParticipant
Hello thedales…. there are different types of POTS, but I do have the type that can sometimes be confused with Neuroendocrine tumors. Family history and testing can pretty much clarify which is which.
Many times, folks are not aware of the POTS subtypes, so leaving a link to a paper that explains. There 2 broad categories, Primary and Secondary.
Hope this helps.
MGCParticipantThe sleep issues those of us with high NE have interests me, and I was thinking about yours today. I don’t sleep walk, but I have about 1/4 the REM sleep most folks have. NE inhibits REM. Sleep walking has to have an alertness/arousal component, which is a function of NE, to it just for the motor action if nothing else. Anyway, when you have time, you might want to use Dr Google and look at high NE symptoms and NE and sleep.
Good luck.
MGCParticipantMr. Physics, have you ever had your Norepinephrine (NE) levels tested? If not, I urge you to do so. High NE levels on standing is the Hallmark of Hyperadrenergic POTS (H POTS), and this type of POTS is treated differently than the other types. It is important to know your type for this reason. For example, salt is not recommended for this type, and recommended meds are Clonidine or Methyldopa.
H POTS is the type that has been seen in my family and is genetic. Those of us with H POTS have some problems that are not seen in the other types. You can do some reading at the link to a Vanderbilt page I will leave. On the left of the page are some links, and I would urge you to have look around at the info they provide. https://www.mc.vanderbilt.edu/root/vumc.php?site=adc&doc=38882
Gail
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