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Dear Dr. Diana,
Firstly let me say that I am so thrilled to be coming to your PotsCare facility next week. I know it will help me tremendously. My doctor is pleased, also. I am doing better on the Diamox. I have not been tested for anything to do with kidney stones, though. I will bring this up when I am at PotsCare. I must say that NOTHING has made since for the last thirty, yes thirty years, of my suffering until I tried the H1 H2 blockers and the Diamox. Unbelievable. That is why I am traveling such a long way because I know that there is more help to be had.
Thank you,
SusanThank you both. Yes, Dr. Diana…I am now on Diamox. Big help. It seems that I may need more than the 125, 125, and 250. Does it stop working as well? I am using the drops I purchased from your site and staying alkaline. I wish I could be more so. Do you know people who take more Diamox? My doctor has basically given me free rein. He watched all of your videoes. The H1 and H2 helped much but gave me real gut issues. My stools became clay colored. I was on Pepcid 20 twice a day, zyrtec twice a day, ketotifen 1 pill 4 times a day…Help.
Dear Dr. Diana,
I have the Driscoll theory. I cannot find the free brochure on POTs.com. I did find the website, though. Very exciting. I am taking the antihistamines and they are helping. I bet you are quite correct that it is not the BOTTOM LINE. I do know that they help. I had a concussion and it brought out all kinds of symptoms. Firstly clear fluid ran from my nose. Now, when I drink quite a bit of water my nose runs. Go figure that out…My lyme would be late stage but my blood work is inconclusive. I have, as you know, POTS, EDS, and MACD…genetic variety. Heck, I even had a surgery done to enlarge my urethra at the age of 2 because I was having so many cystitis infections. Now I know that my C1 C2 are out of place. The night of the concussion, when I lay down seven hours later, I got the most FEROCIOUS HEADACHE! This sounds like too much pressure to me. I cannot get alkaline! My BUN levels have always been slightly elevated or high. My lyme doctor has given me the Diamox. I took it…it tried to work. I would love to see any information from POTS.com. I went to the website and it just talked about who you will treat. People like me! I am not in great shape to travel…I am in CA with an integrative lyme specialist. We have not started treating the lyme. I am so sensitive.
I am a “Valley Girl” from South Texas. It would be great to be treated closer to home. Ranching family. My
grandfather was Lloyd Bentsen and my mother is Betty Bentsen Winn.
Thank you,
Susan
